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About us

The Irish ME/CFS Association, through our various activities and awareness campaigns, strives to improve the situation for people with ME/CFS and to give them information to empower themselves. The group has been run by volunteers for over two decades.

Before the Covid pandemic, between 10,000 and 20,000 people in Ireland were believed to suffer from Myalgic Encephalomyelitis (ME), now sometimes diagnosed under the name Chronic Fatigue Syndrome (CFS). It is thought that the figures have now grown dramatically. Many unfortunately have not been diagnosed.

Our aims


To promote greater understanding and awareness of ME/CFS in the general public, medical profession and other related services.


To offer support for sufferers and carers.


To raise money for research into the cause(s) of ME/CFS and hopefully effective treatments. This includes supporting research into potential biomarkers and diagnostic tests.

Our activities

  • Public meetings in various venues around Ireland (usually with a guest speaker) along with occasional webinars
  • Newsletters 3 times per year and weekly email bulletins with updates on the latest research, news, events, etc from Ireland and around the world
  • Information helpline and telephone support network
  • Awareness-raising (especially through the mainstream media and our social media channels)
  • Medical educational initiatives (online and in-person seminars, information mail-outs, etc.)
  • Advocacy, fundraising for research and other services, etc.