What is ME/CFS?
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M.E. (Myalgic Encephalomyelitis) usually starts after a viral illness and is recognised as a neurological condition by the World Health Organisation (W.H.O). However, perhaps because it is a largely invisible illness with routine tests usually being normal (although research has found many subtle abnormalities), sufferers often face many difficulties getting appropriate support and treatment. It is often now diagnosed under the name Chronic Fatigue Syndrome (CFS).
Free Information Pack
Our free information pack is
designed for people who are not familiar with medical jargon. It
contains a booklet and a number of leaflets for people with the illness
and anyone else interested. Contact
us with your postal address for a copy.Documents about ME/CFS
Some documents that
might be useful for individuals with the
illness,
their family members and professionals, are as follows:
This booklet was created by an international panel of experts
under the
auspices of Health Canada. We posted a copy, along with some other
information, to all Irish GPs (over 2500) and 110 consultants in 2006.
In 2008/2009, we again wrote to all Irish GPs, sending them a bundle of
information including three copies of the ME/CFS diagnostic ticksheet
from these guidelines.
This booklet was prepared by an international panel of experts
who
between them
had diagnosed and/or treated more than 50,000 patients who have M.E.
This covers both diagnosis and treatment. We have sent copies (along
with other information) to nearly 1100 Irish GPs and hope to send
copies to others when funds allow.
Pediatr., 19 June 2017.
Written by an international group of experts.
Produced by the International Association for Chronic Fatigue
Syndrome/
Myalgic Encephalomyelitis (IACFS/ME), "the largest international group
of clinicians, researchers, and other professionals dedicated to the
care and research of patients with ME/CFS".
This was published in 2015. It was prepared by the august
Institute of
Medicine in the US (part of the National Academy of Science). They had
been given $1 million by various US health agencies to develop
evidence-based clinical (as opposed to research) diagnostic criteria
for ME/CFS.
A short clinicians’ guide was published to
facilitate its use.
Other useful sources of
information that can be purchased elsewhere:
The 2001 edition, which was much shorter, can be downloaded here.
This book provides help to patients with severe ME as well as their loved ones and professionals caring for them.