More Information

(A) Groups the Irish ME/CFS Association have given contributions/donations to:



(i) ME Research UK http://www.meresearch.org.uk/index.html

(ii) The CFS Research Foundation http://www.cfsrf.com/index.html

The Irish ME/CFS Association has given €70,000 to each of these two research charities.
The group has also given a few much smaller donations/contributions on other occasions to one or other of these charities e.g. the entrance money and the money from raffles for the ME Awareness Week talks given by Dr. Vance Spence (ME Research UK) (May 2005) and Dr Jonathan Kerr (CFS Research Foundation) (May 2006)

 

(iii) BRAME  http://www.brame.org/ 

Much of the money raised by the group has been raised using blue ribbons and blue ribbon material obtained from (BRAME Blue Ribbon for Awareness of ME).  The group has generally given smallish donations annually to keep the blue ribbon campaign going internationally.

 

(iv) The Tymes Trust http://www.tymestrust.org/

The Irish ME/CFS Association is an International partner group of the Tymes Trust a charity mainly for children and young people with M.E. (and their families).  A related link is http://www.youngactiononline.com

 

B) Here are some other National and International M.E./CFS Group's websites:


25% Group (for the 25% of M.E. sufferers who are severely affected) www.25megroup.org/ 

M.E. Association http://www.meassociation.org.uk

Invest in ME - "an independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (M.E.), as defined by WHO-ICD-10-G93.3. " http://www.investinme.org/index.htm 

Irish ME Trust - the other national ME Group (sometimes people mix the two groups up (Irish ME/CFS Association & Irish ME Trust) or think there's just one group) http://www.imet.ie

CFIDS Association of America - probably the biggest group in the world www.cfids.org

National CFIDS/ME Foundation (US-based) http://www.ncf-net.org

 

C) Some other interesting websites are:


The Irish M.E. Tips Collection contains information on coping with severe M.E. and is available at: http://www.trevwilliams.co.uk/metips/

Co-Cure ME/CFS & Fibromyalgia - Information Exchange Forum http://www.co-cure.org/

CFS Phoenix - This site explores treatments, experiences and research into Chronic Fatigue Syndrome http://phoenix-cfs.org/The%20SITE/mainmenu.htm

The ME/CFS Information Page http://www.cfids-me.org

ME-NET - has a good archive of research papers http://www.me-net.dds.nl/



ME/CFS News http://www.cfs-news.org

About Fibromyalgia and CFS http://www.chronicfatigue.about.com/library

CFS - Information International http://cfids-cab.org/cfs-inform/